So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Saturday, October 8, 2011

Color My World

As I am self-centered, I do regularly check the stats. for this blog.  I'm also terribly needy and must make sure that both my followers are still reading.  Technically I have three followers.  It's just that my mom isn't computer savvy so other people have to navigate the site for her. 

In addition to stats. it also shows key words people used to end up on my blog.  Sometimes people are using key word to get here on purpose.  Other times they stumble here via their key word search.  (Can you imagine what they must have thought?  Especially the hits from Germany and other countries. "Ja.  No wonder American space program failing.  They are putting autism children in space.  Is true.  I read it on the Internets.")  Recently one of the key word searches listed was "Reluctant Astronaut Coloring Book."  I was like, really?  Did someone beat me to the marketing punch?  Then I was surprised that someone would want to make an R.A. coloring book let alone color in one.  Upon further investigation, however, I discovered that this coloring book has nothing to do with my R.A.  Apparently there was a movie made called The Reluctant Astronaut starring the venerable and talented Mr. Don Knotts.  No doubt that was a contender for the 1967 Academy Award.

But that got me thinking what a coloring book about my R.A. would contain:
  • Pictures of ketchup (packets and bottles), Pringles, Munchos, and chewies under which captions read: A good astronaut needs to have a healthy diet so that he is prepared for the invasion and subsequent battle for domination of Earth.  Broken Pringles are an affront to the R.A.'s delicate sensibilities.  Most earth food is inedible. Walking while eating improves digestion. Toe walking while eating really improves digestion and builds up calf muscles.
  • Pictures of the R.A. in action: A good man servant knows to always keep his master's juice cup full (or he will feel his master's wrath!)  To build his leg muscles, the R.A. scales Daddy's bureau daily.  Mommy did not give the R.A. a banana as he demanded.  The R.A. does not want to hear her pitiful excuse that there are no bananas.  Therefore the R.A. will chin Mommy's arm.  Repeatedly.  Regardless of the fact that she is attempting to strain a large and steaming pot of pasta.
  • Pictures of Thomas the Tank Engine: One of the few worthwhile creatures on Earth are Thomas and some of his cohorts.  That Sir Topham Hat is already marked for vaporization as well as his overbearing and demanding mother.
  • Pictures of intricate designs created from Dum Dum lollipops: The R.A. regularly communicates with the home planet and shares invasion plans.
I mean really, what child could resist?  Well, the R.A. for one.  He will only color on things that are absolutely not meant to be colored on like IEP (Individualized Education Plans) reports or his sister's homework.  The R.A. does have lots of actual coloring books.  When we hand them to him he looks at them with a disdainful expression as if we are attempting to give him a bag of broken Pringles.

Just wait until the R.A.'s action figures come out - with ketchup bottle action grip!

No comments:

Post a Comment