So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Friday, April 27, 2012

Nothing to See Here

This afternoon I was puttering around, having a swell time for myself doing laundry and washing water bottles.  The R.A. was upstairs.  Since doing the laundry required running up and down the stairs at frequent intervals, I let him remain on the second floor "alone."  He was also clutching the "Stick of Infamy" and in addition to waving it wildly would tap and whack it on the floor so I could hear his exact location above me - "Tap, tap, wham, wham!"  Okay, he's in the hall.  "Tap, wham, tap!"  Now he's moved to his bedroom, "Whack, whack, tap, tap, tap!"  He's migrated to my room, etc.  It was like a primitive ancestor to sonar - if sonar came with caterwauling.

At one point I remained on the second floor for an extended period of time, frolicking in my room as I sorted laundry.  Since we were now pretty much on the same floor at the same time (except for those moments when the R.A. would march up and down the stairs, yowling and whacking the stick - he was either trying to rally the troops or somebody is in for it - I hope it's not me) I admit I relaxed my R.A. vigilance.  I suddenly realized I had not heard any whacking in a while.  Off I bolted to investigate.

I found the R.A. in the bathroom.  He was seated in front of the cabinet underneath our bathroom sink.  The minute he saw me he shoved closed the drawer that had been previously opened and gave me a quasi- innocent look that said, "Hey, what's up?  Not doing anything here.  Just hanging out in the bathroom, checking out the fine design of this bathroom cabinet.  What is this wood, balsa?  Nice, very nice.  You can go now."  Despite the R.A.'s quick silver reflexes, I had caught him examining certain items in said drawer such as a couple of screw drivers and a very large hammer.  He was doing a pretty thorough appraisal, lifting them to the light, running his fingers over them.  The R.A. had a look on his face that said, "Humph.  Interesting."  He was in deep contemplation which explains why he didn't hear me coming.

A few things come to mind as I reflect on this:
  • The R.A. has joined an intergalactic mob outfit as an enforcer and will use the tools in threatening ways to shake down "clients."
  • The R.A. will use the tools in threatening ways to shake down his parents/caregivers.
  • The R.A. will use the tools to make his great escape.  
Initially I thought since the R.A. doesn't know what a spoon is for, it will take him a while to figure out how to use the tools.  After briefly thinking about it (8 seconds) I quickly recognized that the R.A. possesses superior intelligence when it comes to figuring out those things we would classify as "naughty."  Therefore, he doesn't know what a spoon is for but I'm absolutely certain that if I left him unattended with the tools for a minimum of 6 minutes he will have removed both banisters from the second floor stairway and disassembled the microwave.

So, currently, I have the R.A. with me in the living room.  He is multitasking - pacing, yowling, stick whacking AND eating Pringles.  I know the R.A. is biding his time until he can race back up the stairs to the bathroom and get his hot little hands on the tools.  I am biding my time until I can put him to bed and hide the tools.  Of course the R.A. will find the tools within a short period of time and thus we will have created another exciting and action packed game - "Where Are Those Items You Don't Want Me to Have Located Now And Don't Bother Trying to Fool Me Because You Have the Intelligence of Summer Squash That Has Gone Bad?"  I predict it will almost be as much fun as "Turn Off That Light Immediately If Not Sooner And I Don't Care If It's Pitch Dark and You Are in the Shower Attempting to Shave Your Legs!"



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