So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Friday, August 10, 2012

Olympic Fever


Like most people, the R.A. is also suffering from "Olympic Fever."  We discovered the R.A.'s interest in the games of the 30th Olympiad when we noticed him watching the events with great attentiveness despite the fact that there was no ticker tape scrolling across the bottom of the screen.  He has two favorite Olympic viewing positions:

1. Jumping up and down in front of the television, yowling, while intermittently flapping his hands and flicking the TV screen
2. Sitting quietly on the couch, so absorbed in the action that he momentarily forgets his disdain for earthling protocol and thus looks like a "regular" earth person at repose, as opposed to his usual R.A. self

The R.A.'s favorite events, in no particular order are:
1. Platform diving
2. Springboard diving
3. Gymnastics

Whether jumping or sitting, the events hold the R.A.'s rapt attention and he thoroughly dislikes being interrupted while watching the Olympics.  When I do have the galling temerity to interfere with his viewing he snaps in Yowlish at me.  In English it roughly translates to: "For Kitchen God's sake, woman, zip it!  Can't you see I'm busy? I'm trying to understand this guy's technique for throwing himself off the diving platform.  How do you expect me to duplicate the same move from the top of the china cabinet?  You're so needy!  Take your own damn allergy medicine!"

We have determined that the R.A.'s engrossment in the Olympics is not in the interest of entertainment.  It's mayhem research.

During the Olympics there's been this one commercial that they've been airing about U.S. gymnast, Jonathan Horton. In the ad the narrator tells the story about how when Jonathan was four years old he climbed to the ceiling of a department store so his parents got him gymnastics lessons.  Every time my husband and I see that commercial we shudder.  We can't help think what it would have been like if we got "formal" gymnastics lessons for the R.A.  Wouldn't that be like giving the Green Goblin access to the Bat Lair?  Yes, I'm mixing my comics, but you get my point - don't empower someone with already freakishly potent skills.  I could see the television commercials for the R.A.:

When the R.A. was four years old, after two weeks of formal gymnastics training, he scaled the side of his house while clutching his sister's pet fish between his toes.  After one month of formal gymnastics training the R.A. absconded to Paris and was found dangling from the Eiffel Tower from one foot while clutching his sister's replacement fish in his other foot and demanding chips and juice from his father.

 I've been thinking about what the Olympics must be like on the home planet.  I'm sure quite different from earth competitions.  Remember - those people are like ancient Spartans on steroids but not as gentle, easy going or pleasant.  I'm pretty certain that there are no silver or bronze medals.  On the home planet there are no medals for "almost winning."  I would also bet that the losers do not go home in shame because as soon as they lose events they are beheaded.  There is no, "We'll get them next time" on the home planet.

Here are some events that I imagine make up the home planet competition:

1. Chinning: Refer to the entry, "Chin Chin Cheroo" for a description of this event.

2. Toe Jumping: Like earthling running events, Toe Jumpers could compete against each other for endurance (like distance runners) or speed (like sprinters.) -

WM476@#% is the reigning galactic toe jumping champion.  He took the event at the last Intergalactic Games.  All eyes are on him, seeing if he can pull off a repeat performance.  I guess we need to ask, how badly does he not want to be beheaded?

We should note that *!n74400X^ missed the last Galaxy Games due to a freak training accident during which she ricocheted into the training television that she was simultaneously flapping in front of.  

3. Hand Flapping/Finger Flicking: As with our earthling gymnastics, I would think these events would be based on judges' scores of performance and technique -

He is attempting a very daring "Flap-Flap-Triple Flick-Flap-Flick-Flap.  This is where we will see just how good his technique is.  Only one other athlete, ^^@,?0023B, has attempted such a move in competition and as we all know, he ended up with two sprained wrists which I'm sure didn't seem so painful once they lopped his head off.

That was a very innovative routine.  Now we will see if the judges appreciated her incorporation of an inverted Flick-Flick-Tap.  Perhaps it's just too avant-garde.

4. Large Gourd Wrangling: Refer to the entry, "Trick or Trick" for a description of this event.

One thing's for sure, the closing ceremony must be really brief because there probably aren't very many athletes left.  Bloody but brief.









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