So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Sunday, February 24, 2013

The Barber of Seville on Crank



I don't think they have hair on the home planet.  I don't think they have hair on their heads or arms or faces or any place.  No doubt the amount of hair that we earthlings have re-enforces the R.A.'s opinion that we are nothing more than unintelligent apes that have a strange aversion to Sharpie markers which further contributes to his conclusion that we are illiterate half wits.

Unfortunately, as part of his "assimilation" as an earthling, the R.A. had to have hair.  But remember, the R.A. was not interested in this earth mission and really didn't pay attention at the pre-mission briefings when they covered earthling physical characteristics.  Therefore he didn't quite get the earth hair thing right.  He kind of muffed up eyebrows in that despite having such dark hair on his head, his eyebrows are extremely fair, sort of like a reverse Marilyn Monroe thing going on.  The result is that it lends to an expression that looks perpetually surprised, even when he's charging at his victim while yowling in fury - "YOWL! YOWL!  I am enraged despite the fact that my face says that I am bemused!"

And then there's the hair on his head.  Well, it isn't so much a head of hair as a collection of cowlicks.  It grows at unnatural angles.  The only way we've managed to tame it is to give him a baldy sour haircut.  For those of you who don't know what that is, it's like somebody looked at some poor slob in a run of the mill crew cut and denounced him as a long haired hippy and gave him a real deal short hair cut.  Basically a baldy sour is a crew cut on steroids.  It's more like an illusion of hair.  Despite such a close haircut the R.A. still has weird patches of hair.  Even his hair is defiant. 

I know this will be hard to believe but we don't take the R.A. to a barber.  My husband and I reckon that halfway through the session either DSS or the police would be called and at that point we would probably be willing to go with whatever entity would take us.  Instead the R.A. gets a good old fashioned home shearing.  My husband is our very own at home barber.  Luckily the R.A. is extremely mellow so it's a simple procedure. 

NOT!

An R.A. haircut is something that we dread like typhoid fever.  Okay, more than typhoid fever.  Typically, two to three weeks prior to the actual haircut I will survey a very scruffy R.A.  His hair has outgrown the baldy sour and is shooting out in all sorts of ways that defeat the laws of gravity.  I will casually say, "Looks like someone needs a haircut."  My husband will issue a noncommittal grunt. The next day my husband will then appear with a freshly shorn head and with wide eyed false innocence say, "Well you said someone needed a haircut" purposefully misunderstanding that I meant the R.A.

More procrastination ensues and a couple of weeks pass.  By now the R.A. is going around with perpetual hat head despite the fact that he is not wearing any hats.  Finally my husband's mother will remark on the R.A.'s hair and then my husband will grudgingly accept that it is time to tackle the R.A.'s hair.  But not without a lot of whining and sulking.

Because, literally, tackling is involved in the R.A.'s haircut.  This is not easy to do while wielding an electronic razor.  But I give the R.A's dad props.  He has mad Viking/Jedi/Ninja/Sweeney Todd barber skills.

The Day of Reckoning will come.  In a dejected yet resigned tone, my husband will announce that it is time to cut the R.A.'s hair.  This announcement is made out of earshot of the R.A.  One never wants to tip off the enemy.  It cuts down on the success rate of coaxing the enemy into the bathroom.

Prior to the "procedure" my husband readies the equipment and the area.  I doubt most operating rooms are prepared with such precision.  My husband has learned the best offense is not having to stop and search for the proper razor attachment while clutching a rabidly wild R.A. between his legs to prevent his escape.

Then it's time for the Big Show.  Usually by halfway up the stairs to the bathroom the R.A. is wise to what is going on.  He's no fool.  The R.A. struggles for freedom, yowling and crying.  All we need is for his sister to look out from in between the staircase bars and call, "Dead man walking!" and it would be like an execution scene from an old James Cagney film.

Glasses askance, sweating profusely, my husband wrangles the R.A. into the bathroom.  He hands the R.A. a lolly.  Initially the R.A.'s lip curls in disdain and he looks like he is going to toss it back in his father's face.  But then he thinks better of it (why waste a good Dum Dum?) and unwraps it, his vicious caterwauling temporarily paused.  My husband moves in for the kill.

Only to be nimbly deflected by the R.A. 

The Dance of the Razor begins.  It is a wild, almost feral dance with much noise and drama.  My husband is begging the R.A. to calm down and let Daddy cut his hair.  The R.A. yowls his refusal.  There is twisting and turning, wrestling and wrangling.  And the tears!  Mostly my husband's.  Oh the inhumanity!

At this point my husband calls for backup.  I can only pretend I can't hear his bellows for help for so long before I have to head up.  It's usually when a neighbor appears and asks if everything is all right that I know it's time.  The bathroom looks like the Hindenburg passed through but we've got more charred carnage.

By this point the R.A. is doubly enraged because not only does he have to endure the indignity of a haircut but there is hair all over his Dum Dum.  The lolly has also made his hands sticky which means his hands are covered with hair causing him much distress.

I get to subdue the R.A. so that his dad can concentrate on more delicate areas of his head such as around the ears.  This involves me sort of sitting on the R.A. while crooning about what a good boy he is.  The R.A. spits hateful insults back at me as well as wiping his hairy and sticky hands all over my arms.

"We're almost there!" my husband pants.

"Hurry!  I can't hold on much longer!" I choke back, my trachea clogged with the R.A.'s hair.

Finally and blessedly, it is done.  My husband and I are spent but the R.A., consumed with fury and brandishing a furry Dum Dum, roars, rages, paces, pats his almost bald head, and scratches.  Oh, yes.  The cherry on the cake of this little project is that the R.A. is allergic to his own hair.  There is no time for us to rest or regroup.  We have to hustle the R.A. into the shower as soon as possible and rinse off the excess hair as well as his lolly.  The lolly is more of a challenge than the body.

Fortunately the R.A. does like his showers and his protests are more out of a sense of duty than agitation and he does allow us to deposit him into the bathtub.  He still snarls at us any time we go near him but there is no chinning.  In the shower the R.A. paces while rubbing his head as if to say, "My beautiful raven locks.  What have you done to them?"  Warily he permits us to bathe him and wash his head as if he considers it a necessary evil.

Admittedly these are longish showers as it is also a break for us.  When the R.A. commences climbing the bathtub fixtures and wrapping himself in the shower curtain, we know it's time to take him out. Well, at least 10 to 15 minutes beyond the climbing and wrapping.

I read somewhere that there are sheep shearing competitions.  It's too bad my husband has such bad allergies because I think he could have been a contender.

Monday, February 18, 2013

I am a great artist and I know it. The reason I am great is because of all the suffering I have done. (Paul Gauguin)

Updated Quotation: I am a great artist and I know it. The reason I am great is because of all the suffering I have caused. (The Reluctant Astronaut who further declared Paul Gauguin was worthless and weak and should have been tagged for vaporization but unfortunately was already dead - the coward.) 


The R.A. is a tortured artist (come to think of it, he is actually a "torturing artist.")  His preferred medium is Sharpie marker on hard wood floor although occasionally, when feeling frivolous and a certain joie de vivre will use a white wall as his canvas.  The R.A. is tortured because his artistic genius is not celebrated but rather met with hostility by the ignorant masses (his parents.)  Unfortunately his public (us) feels like we are suffering for his art.  As with everything concerning the R.A. it isn't so much art as another tool of destruction just more colorful.

The R.A.'s art is also fraught with ritual, like so many aspects of his life.  His artistic endeavors go something like this:
Step 1: Despite his parents having gone over the house looking for Sharpie markers like a HAZMAT team at a nuclear power plant, the R.A. procures a Sharpie marker.
Step 2: The R.A. unleashes his full artistic fury on the largest and most visible floor space.
Step 3: The R.A. is discovered in mid artistic flourish by one of the meddling Philistines (a parent.)
Step 4: Yelling commences.  The Philistine yells, "NO!" upon seeing the further desecration of the hard wood floor.  The R.A. yells, "NO!" because the Philistine has the temerity to interrupt yet another masterpiece.
Step 5: The traditional "Sharpie Marker Wrestling Match" ensues at the end of which there is more Sharpie marker on the participants than on the floor.
Step 6: Upon being deprived of his instrument the R.A. unfurls a tapestry of alien curses which addresses his frustration at our small mindedness and unreasonableness.  Again.
Step 7: Vicious chinning commences.

This past Saturday the R.A. outdid even himself when it comes to his artistic relentlessness.  I was in the second floor bathroom having a swell time cleaning and disinfecting.  The R.A. was in my bedroom, supposedly watching one of his shows.  I never leave the R.A. unmonitored for more than a couple of minutes at a time because that's all the time he needs to climb something inappropriate or color something inappropriate.  So after a short time I did check on the R.A. and discovered him "creating" the heck out of a portion of my floor with a black Sharpie marker.  Following proper protocol we engaged in the sanctioned "Art Ritual" (refer to Steps 1 - 7 above.)  After Step 7 I did a sweep of drawers and shelves to make sure there were no other Sharpie markers.  Determining there were none, I departed back to the bathroom for some more enjoyable disinfecting.

A few minutes went by and I returned to the bedroom to find the R.A. once again coloring the floor with yet another black Sharpie marker.  I couldn't believe it as I had engaged in Sharpie recon.  The R.A. and I once again participated in the "Art Ritual."  I double-double checked the area for rogue Sharpie markers and finding none, headed back to the bathroom.

After a few minutes of some delightful cleaning, I went back to the bedroom to discover the R.A. vigorously coloring the floor with a green Sharpie marker.  What the heck?  Not only had I double checked the parameter, but now he was pulling out colored Sharpies!  Where did he get that?  I didn't even know we owned colored Sharpies. We engaged in the "Art Ritual."  This time, after re-double double checking the area for markers I remained in the room to see if I could ascertain where the R.A. was keeping his stash.  We both tried to act casual, as if we weren't carefully observing each other - "Just chillin'.  No big deal.  Just hangin.'"  After several minutes of attempting to look at each other while not looking like we were looking at each other, I returned to the bathroom.

Shortly after I went back to the bedroom to see the R.A. on the floor with an orange Sharpie marker.  Seriously?  Where the heck are they coming from?  We then partook of the traditional "Art Ritual" which I must admit that by this point we were both extremely frustrated therefore the wrestling and yelling were a bit more energetic than usual.

After Step 7, I lurked outside the bedroom and peeked my head in the room hoping to catch the R.A. in the act of obtaining a Sharpie.  The R.A., sitting in the middle of the floor sans marker, looked right at me, his expression saying, "Oh, hello.  How nice to see you.  May I help you with something as I sit here doing absolutely nothing remotely naughty?"  We repeat this newest interaction several times.  Either the R.A. has run out of markers or I am, in fact, as dumb as I look.

Apparently I am as dumb as I look because a few minutes later I discover him hard at work coloring the bedroom floor with a pink Sharpie marker.  This time all heck breaks loose as we had really had it with each other.  There's yelling, yowling, wrestling, wrangling, and intense chinning.  I'm sure the Battle of Bull Run was more sedate.

Thankfully, at this juncture my husband interrupts the scrimmage as he needs my help shoveling our blizzard attacked driveway.  I gladly deposit the R.A. into his secure room.  The R.A. looks like a psychedelic trip's version of a colorful yet angry Leprechaun.  It goes to show you how spent I was because the prospect of shoveling two feet of snow was a welcomed break.

Neither my husband or I have been able to determine the source of the Sharpie markers, especially the colored ones.  We both swear we've never purchased colored Sharpies.  They must be from the R.A.'s war arsenal.

The good news is that I believe I have seized all the Sharpie markers as lately the R.A. has been relegated to pens and pencils which he does not use on the floor.  Obviously this is because their marks are too easy to remove from hard wood.  Today, however, he was using a yellow highlighter.  He did not use this directly on the floor but rather this was utilized primarily and vigorously on paper, any paper he could get his hot little hands on - scrap paper, bills, school reports, envelopes, work reports, and curiously, his socks.  My theory is that the R.A. resorted to these items because the yellow doesn't show up very well on hard wood floors.  What good is artistic genius if one can't see it?

Our house is resplendent with the R.A.'s creations and the creative process is never ending.  We have stopped being so fussy about our floors and walls opting to put off re-doing everything until the R.A. finally outgrows  this "Sharpie Marker" phase.  I figure we'll be tacking the floors and walls in 20 to 30 years.

*Update: While writing this post my husband and the R.A. were up in our bedroom "Watching TV" (euphemism for my husband napping and the R.A. teetering dangerously on unsteady objects).  The R.A. punched my husband in the calf and demanded juice.  When his dad returned to the  bedroom he discovered the R.A. attempting to hide a black Sharpie marker behind his back.  Apparently replacement munitions have arrived from the home planet.

Sunday, February 10, 2013

I Don't Have a Problem. I Can Stop Anytime I Want


I may have mentioned, in passing, the R.A.'s slight interest in french fries.  Okay.  It's a bit more than a "slight interest."  Let me put it this way, if they could find a screenwriter fluent in Yowlish, they would make an afterschool special about the R.A.'s fry addiction.

It had dissipated for a short time but now it's back full force plus eleven.  When I come home after work the R.A. flies into the kitchen demanding, "Feh fies!  Feh fies! I want feh fies!"  Unfortunately I have the temerity to not have the demanded fries seeing as I've just walked in the door straight from work.  I respond "No french fries."  The R.A.'s response is more adamant and he now hollers, "I want feh fies!" I clarify with, "No french fries.  French fries go bye-bye."  The combination of no fries and my insolence sends the R.A. over the edge. This is unacceptable and thus I am the lucky recipient of the R.A.'s righteous wrath.  He caterwauls a stream of alien obscenities, charges at me, stops abruptly and grabs my left hand.  The R.A.  proceeds to aggressively chin my left hand.  He then steps back and assesses me as if saying, "Well, what about now?" I apologize and repeat that there are no french fries.  We then repeat the whole procedure.  Often two to three more times.  Finally, at the actual conclusion of our ritual, the R.A. stops chinning my hand, shoves it aside and shoots me a look chock full of disgust.  This is sort of our own quaint version of "Groundhog Day" in that we go through this pretty much every weeknight.  He yowls furiously for fries and I never have them.  One of us needs to change our approach to this situation.  Seeing as he's so flexible my money is on the R.A.

A short time later, usually while I am frittering away my time partaking in frivolous activities like getting my daughter's dinner or washing dishes, the R.A. will re-appear lugging my pocketbook and huffing, "Feh fies."  By now he has determined that since I had the audacity to arrive home sans fries I can haul my fat fanny out and pick them up, immediately if not sooner.

Surveying him and his borrowed accessory I  say, "No."  The R.A. pauses and then decides I am too dimwitted to understand what he wants. He then attempts to force my hand to grab the pocketbook's handle.  This action can be additionally challenging if my hand is holding a cooking utensil or covered with soap suds.  We engage in a bizarre hand wrestling match as the R.A. tries to foist the pocketbook on me and I vigorously rebuff him.  All the while we are yelling at each other:

"I want feh fies!"
"No!"
"I want feh fies!"
"Feh fies go bye-bye!"

Finally, and at the end of his rope, the R.A. will spike the pocketbook at my feet or more often on my feet, yowl furiously and grabs my left hand.  He then chins my hand with unrelenting fury.  If I am fortunate enough to have been in the process of washing dishes my hands are sudsy and therefore too slippery for him to get in a good chinning.

The R.A. is nothing if not a master of strategy.  Lately he has re-assessed the situation and determined that he has underestimated the level of my stupidity.  He has decided the problem is actually that I am too dense to fully comprehend his wishes.  For the past few nights, following our pocketbook wrangling, he has later appeared with my wallet.  The R.A. tosses it at my feet and caterwauls slowly and clearly, "I want feh fies."  He looks at me with an expression one usually reserves for a particularly slow circus animal  Then for emphasis he will jump up and down while flicking his fingers in my face.  This loosely translates into, "Get it now, dumb ass?"

Unfortunately, for all of us, I must refuse his request.  My refusal elicits an explosion of alien curses.  One does not have to be fluent to know that what has been yowled involves insults concerning my mother, my mother's mother and my mother's mother's mother.  Of course while this is occurring my left hand is being fiercely chinned.

Typically, once we've gone through the pocketbook and wallet scenarios a maximum of three times the R.A. eventually accepts that the fries are not forthcoming and proceeds to  our next favorite nightly activity - climbing the china cabinet.  This past Thursday evening, however, the R.A.  must have been jonesing pretty badly for those salty fried bits of goodness.  I was sitting and attempting to eat my dinner when the R.A. appeared next to me, dragging my pocketbook.  He must have been extremely desperate because he abandoned the french fry protocol.  While I continued to try to eat we engaged in some rousing pocketbook wrestling.   Finally I abandoned eating, wrangled the pocketbook from him and put it back where it belonged.  After several minutes passed the R.A. returned and tossed my wallet onto my dinner plate and half consumed dinner while yowling, "I want feh fies!"

To his dismay I refused, removed the wallet from the plate and continued eating. The R.A. was furious.  He grabbed my left hand and chinned it.  Unluckily for me I eat with my left hand so I was forced to bumble through the rest of the meal using my right hand.  It was not a pretty sight for various reasons.  But what I have learned while on this job is to eat whenever you have the chance regardless of the circumstances. Dinner time at my house is a lot like what WWI soldiers went through in the trenches minus the caterwauling.  We have hand to hand combat and everything.  The Kitchen God knows some nights I wish the Red Baron would come and put me out of my misery.

Following dinner, while I was in the kitchen cleaning up, the R.A. thundered into the room, yowling and howling like a mad man.  He had gotten a hold of a blue marker and colored his forehead and right side of his face.  The R.A. descended upon my left hand and while chinning he cried, "Feh fies! I want feh fies!"  It was like being attacked by a tiny yet insane Braveheart: "They can take my nuggets but they'll niverrrr take my french fries!"

I have a fear that as his addiction grows so will his desperation.  I have visions of him hot wiring my car and knocking over a fast food restaurant:

"What can I say, Officer?  It all happened so fast.  One minute I heard this odd howling but nobody was there and the next minute there he was, leaping over the counter.  He sort of looked like, I know this sounds weird, but like Braveheart in what looked like backwards footieless footie pajamas.  I don't think he was from around here because he was screaming but nobody could understand what he was saying.  My manager tried to give him the money but he threw it on the ground. Then he grabbed my manager's hand and well, sort of kept stabbing it with his chin.  I think he broke his hand.  Then he grabbed a bag of fries and jumped out the drive-thru window.  It was horrible!"

I'm seriously considering calling the Betty Ford Center.  I wonder if they have anyone on staff who speaks Yowlish.






Sunday, January 20, 2013

Sleep When You're Vaporized

My husband and I are in constant conditioning training.  Much of the time we are the last to know that we are in the midst of a drill (of course with all the accompanying caterwauling you'd swear the R.A. is bellowing, "This is not a drill, people!)  Which I don't know why we are always so surprised considering that we know that the R.A. believes us to be worthless and weak and in desperate need of "aliening up."  Last night we had a surprise/guerrilla training exercise.  At 1:45 AM (EST) the R.A. initiated coughing.  My husband had recently come home from work and heard the early warning sounds signaling that a boofing was imminent.  He raced up the stairs and pulled the R.A. from his room, depositing him in front of the bathroom toilet.  Although simultaneously coughing and gagging, the R.A. still managed to be viciously indignant at being manhandled.  In between his wretches he yowled in annoyance at his father: "YOWL! YOWL! YOWL! Vomit, vomit.  YOWL! Gag! YOWL! Vomit, vomit, vomit. YOWL! (Furious hand gestures) YOWL! CATERWAUL! Vomit. (Furious hand gestures) YOWL! Vomit, vomit."  Translation: How dare you treat me with such insouciance, you low born life form!  Don't you know who I am?! Vomit, vomit, vomit."

My husband has, as that great urban philosopher T-Bone says "mad skillz."  He swooped in, grabbed the R.A., swiftly raced to the bathroom and adeptly situated him in front of the toilet.  Not one drop of vomit was spilled except in the toilet.  It was like a "Vomitless Revolution."  I don't think there are Navy SEAL operations that run as smoothly.  In fact, I don't think a Navy SEAL would have done it any better.

At this point I stumbled out of bed and took over bathing the R.A. Over the years my husband and I have become a vomit clean up machine.  We're extremely efficient.  I handle body vomit recon. and he deals with environmental vomit recon. We're so good that it doesn't matter where the throw up event has happened - in house or in the community.  We just jump into action.  I don't mean to brag but we sometimes make it look effortless.  Don't be jealous.  It's a combination of endless drills and innate talent.  

Once installed in the shower the R.A.'s mood greatly improved.  He was energized and happily jumped up and down in the water's spray, crowing happily.  Warily we watched the R.A. partake in his version of water aerobics.  The more time passed the higher his toe jumps and more animated his arm motions.  Crap.  It was like he got in a refreshing nap and was now ready to tackle the night (or day or whatever the hell it is at 2 AM.)  My husband and I exchanged sorrowful looks.  What good is it being a vomit ninja when you're not allowed to sleep?

As we got the R.A. dressed in clean backwards/footie-less footie pajamas, he vigorously bounced on his toes, flapped for Britain and caterwauled loudly.  It was like trying to dress an overgrown chihuahua on crack.  I swear as he jounced he was also taunting us, "How them ninja vomit skillz now, beeyatches?!  Your punk asses are mine tonight!  Oh, yeah!"  And then to bring home the point he finger flicked aggressively in our faces as if to say, "Take that, sneetches!"

Once a middle of the night vomit event has occurred, the R.A. refuses to return to his own room instead preferring our room.  I believe it's because of our room's many attractive accouterments -  easy access to taller furniture and shelving for greater climbing challenges, a television with On Demand, a lap top that plays DVDs should one want a program not offered On Demand, a bigger bed that has higher bounce potential, not to mention that said bed is perfect for when he finally exhausts himself and crashes.  The room also comes with two dimwitted yet easily intimidated servants.  What more could any alien astronaut ask for?

Usually chips, juice, french fries, carrots, ketchup, and lollipops.

Following protocol, we depart for our bedroom.  I suggest not turning on the TV or computer, thinking that maybe if we keep things quiet it won't stimulate the R.A. and maybe he will just settle down and go to sleep.

So there the three of us are in the bed, in our usual positions, the R.A. sprawled in the middle of the bed and my husband and I clinging to the edges - in complete darkness.  Yes, it was extremely relaxing, like being at a spa. A spa in Hell.  In the bad section of Hell.  Seeing as there was no TV the R.A. found other ways to occupy his time.  First he began by taking all of the pillows and snarling at us if we foolishly attempted to take one.  Next the R.A. spent a while kneading my husband's back and leg hair with his toes. Then the R.A. decided that the actual pillows weren't doing it for him and tried to use me as a pillow.  The R.A. is quite small in stature.  However, at least half of his size and weight are contained in his head.  Let's just say when it comes to the R.A.'s head, he's "big boned."  One of my friends, every once in a while will survey the R.A., look at me and sigh, "You must be soooo glad you had a C-section."  Unfortunately my body was determined as being not as comfortable as an actual pillow and this the R.A. viewed as my being defiant and he spent a good amount of time chinning my hands and yowling at me.

The R.A. did pace himself, not rushing through any of the above activities.  He was also careful to take frequent breaks to wiggle, hand flap, finger flick, and caterwaul.

True to form, the R.A. picked an excellent night for a sleepless conditioning drill.  The following morning (or later in the morning?) I was supposed to conduct a storytime for special needs families.  I was somewhat comforted by the fact that it was for other special needs families so there  was a pretty good chance that those other parents would also be sleep deprived. If I blundered my way through the activities they probably wouldn't notice.  I toyed with the idea of instead of doing an actual storytime we would just let the kids tear the meeting room apart while the adults napped. Although believing it an excellent idea I abandoned it because my boss can be a bit uptight about destruction of library property.

During the drill, my husband and I did manage to doze a bit, frequently being abruptly woken by a ferocious yowl or aggressive chinning - the R.A.'s quaint way of saying, "Get your lazy asses up, losers!"  Unluckily for the R.A. the sleep deprivation exercises are not toughening us up but rather teaching us to sleep under any conditions.  My husband claims he can now sleep while standing upright. I am not that advanced, yet.

Shortly after 4 AM the drill concluded, signaled by the R.A.'s tucking himself in and his gentle snores.  He devotes much of himself to our training and it really takes a lot out of him.  No doubt it is a thankless and hopeless task.

Me, I can't wait for the invasion and the imminent vaporization.  I'm really looking forward to the rest.

Sunday, January 6, 2013

To Go Where No Man Has Gone Before


The Holy Grail
Atlantis
The Ark of the Covenant
Popover Mix

Through the centuries men have searched for legendary and mythical treasures, often embarking on dangerous quests, driven by ambition and an unquenchable desire for discovery.  This is the story of one such backward/footie-less footie pajamaed adventurer.

In addition to being plagued by environmental allergies, the R.A. suffers from food allergies.  As he grows older he is outgrowing many of these food allergies.  Thankfully his extreme food rigidity still ensures that the number of foods he will deign to eat is still in the single digits.

We were lucky enough to embark on the Allergy Adventure at the same time we plunged into the Great Autism Adventure.  So while we were navigating the world of Early Intervention, Physical Therapy, Occupational Therapy, Speech Therapy, Music Therapy, and ABA we were also negotiating the world of Food Allergies.  Ever the over-achievers, one condition was not enough for us.  When it comes to food allergies we found that although there are lots of food on the "No" list there are "allergy food substitutes" that promise to be very similar to the actual foods that they are subbing for.  What we also ascertained is that 98.4% of the time that is a BIG, FAT, STINKING lie.  Case in point - Sunflower butter.

Sunflower butter is presented as a substitute for peanut butter.  We quickly determined that not only is it a lousy substitute, it isn't even in the same category as peanut butter.  They are so dissimilar they should not even be allowed to ever be referenced together.  Let me put it this way - Tom Brady is peanut butter. Mark Sanchez is sunflower butter who then gets substituted by the even yuckier Tim Tebow.  See? There is is no comparison among them.

Shockingly, the R.A. soundly rejected the sunflower butter.  We could not blame him.  Sunflower butter has the consistency and taste of something used to caulk a bathtub.

Sunflower butter was quickly abandoned and we plodded on in our journey to discover edible allergy foods.  Then we entered the exotic and sometimes just plain weird world of allergy cookies.  I don't know if some of the substitute ingredients were the result of desperation or a dare.  Finally we hit on a brand that was extremely close to tasting like an actual cookie.  True, it had the weight and consistency of a small hockey puck but it didn't taste like something from the putty section of Home Depot.  And the R.A. liked them.

This is not to mean that our affair with this allergy cookie was not without its trials and tribulations.  As with most crappy allergy substitutes it was more expensive than the non-allergy item but a low interest loan from my credit union aided with that.  And because it almost tasted like real food, other people liked them and stores tended to run out.  Obviously grocery store staff in charge of ordering  those cookies did not have children with food allergies because they often took their sweet time re-stocking them.  My husband did manage to work out an arrangement with an assistant manager at our local market.  I think he finally wore her down with his pleading and tears of desperation.  Sometimes making a scene is a good thing.

Eventually, some of the R.A.'s food allergies abated and he was able to consume more "non-allergy" items, well, at least it said so on paper.  The R.A. moved away from his allergy cookies to real cookies, a day my husband greeted with much jubilation.  Not only are "regular" cookies cheaper but Market Basket store brand chocolate chip cookies are always in stock (of course they are only two levels above allergy cookies in texture and taste which explains why they are always in stock.)

"Wait!" you cry.  "What does a long winded allergy history of the R.A. peppered with Patriots and Jets references (meaningful only to New England fans) have to do with quests?"

I am glad you asked.  The Patriots inclusion is pretty much because they are on a bye week and my husband was telling me about an article some sports jake-hole wrote ranking quarterbacks that ranked Brady third.  I mean, seriously?  Third?  Who wrote the article, Rex Ryan?  Even he can't be that stupid.

Anyway, the reason I included the R.A.'s allergy history is because it is related to quests - the R.A.'s current quest to be exact.

We first became aware of the R.A.'s quest yesterday when my husband discovered him standing on tip-toe on top of our stove brandishing the Stick of Infamy in one hand and clutching a box

popover mix in his other hand.  To access the stove, he had dragged over a small footstool/ladder.  One is supposed to unfold the ladder to expose the steps.  The R.A., ever a man of quick action, didn't have time for that and climbed it folded.  My husband removed the R.A. from the stove top and then wrangled the box out of an incensed R.A.'s iron fisted grasp.  After the intense yet impromptu wrestling match, the R.A. shrieked at his father, "Cookie! Cookie!"  Pointlessly Daddy attempted to explain that the box did not contain cookies, all the while wondering why the R.A. would think it was a box of cookies.  Much to the R.A.'s ever potent fury, the popover mix was returned to its place in the cabinet above the stove.

Never one to say "never" (really, he has never said it), the R.A. was undeterred and determined.   A short while later my husband found the R.A. back on top of the stove with the SOI and box of popover mix. This time he had used 24 packs of diet Coke and diet Pepsi to reach the stove top.

And so it went for pretty much the entire afternoon - the R.A. on his Popover Crusade and his father attempting to thwart him.  It was like a really boring Errol Flynn film.

However, all was not for naught (as I believe Errol Flynn said as Robin Hood) as my husband did decode the R.A.'s mysterious obsession with the box of popover mix.  It dawned on Daddy that the popover box was sort of similar in appearance to the allergy cookie box, hence the R.A. screaming "Cookie! Cookie!" while clutching it.  Seeing as he hasn't eaten an allergy cookie in over three years, this association was astounding, as was my husband's revelation.

I was at work all day yesterday but when I got home, the R.A. was still at it.  In extreme irritation my mother snapped at my husband to hide "the damn thing."  I got the happy task of occupying/tussling with the R.A. in the living room while his father put the box in another cabinet.  Wise to us, the R.A. yowled in rage while attempting to free himself.  Once the deed was done he wrenched free from my grasp and ran into the kitchen.  Like a mad man he surveyed the room.  He then caterwauled something along the lines of, "It doesn't matter what you do!  I will find it as the Kitchen God is my witness!"

My husband then left to run some errands/escape.  A short time later I heard a loud crash in the kitchen followed by an infuriated yowl.  I ran into the room to discover the R.A. on his back on the floor, flailing his arms and legs in agitation and frustration.  Above where he lay the cabinet door was opened to reveal the box of popover mix.  This time to climb the counter the R.A. had used a large plastic container of pretzels and a box containing a "Hello Kitty" chia pet in an attempt to hoist himself up.  Unfortunately he made one critical mistake - instead of balancing the pretzel container on top of the more stable box, the R.A. had precariously balanced the box on top of the pretzels and thus fell, much to his bitter disappointment.

Apparently, even for the R.A., this was the last straw.  Savagely caterwauling he stomped up to his room no doubt to plan his next attack which involved being naked as a short time later he ran down the stairs sans clothing.  I think the R.A. was going for the ancient Celtic warrior thing and was on his way to get a blue marker with which to color himself.  Sadly our little Braveheart was intercepted by his sister who alerted the local authorities (me) who then subjected the R.A. to backward/footie-less footie pajamas (our equivalent of a prison jump suit) as well as to a documentary about Marlene Dietrich which he watched with me, probably thinking it a cruel and unjust punishment.

And no doubt plotting his revenge.





Tuesday, January 1, 2013

Holiday Funk

I haven't written in a while because a plague has gone through our house.  It started a couple of weeks before Christmas and as with most illnesses that strike our home, is traced back to our very own R.A. also affectionately known as "Patient Zero."  I don't know if it's because of his alien physiological makeup but we very rarely get run of the mill viruses - runny nose, cough, maybe a fever.  It's always something that seems like the Influenza Pandemic of 1918 but not as mild.  Initially I thought the illnesses were always worse because the alien R.A. has sensitivities to our earth atmosphere.  Remember how in "War of the Worlds" the Martians were felled by plain old human germs?  However, following the past few epidemics that have ravaged my family I'm thinking it's actually reversed - in reality the R.A. is attempting to use germ warfare on us.  Unfortunately for him, although we are an agonizingly stupid people we are quite robust and manage to recuperate from whatever his contagion du jour.

The R.A. has been on vacation this week.  This means he has had a lot more free time to devote to his various hobbies such as jumping up and down in front of the television while flicking the screen with his fingers and loudly caterwauling; teetering around the edges of our china cabinet on tip-toes while brandishing the Stick of Infamy; creating wall art masterpieces in crayon and Sharpie marker.  He has been having a wonderful time. Us, not so much.

Here are some Christmas vacation low-lights:

An Homage to Tito Puente
The Stick of Infamy II is back and louder than ever.  Although the R.A. still utilizes it in a "Mussolini" fashion i.e. furiously waving it around while harshly reprimanding us for whatever our recent failures, ever the innovator, he has discovered another use for it.  The R.A. has determined that he does in fact have the rhythm in him and the SOI is his instrument.  His impromptu concerts consist of him repeatedly whacking the floor with the SOI.  Some of the pieces are purely instrumental while on others he adds energetic vocals.  The concerts primarily take place during times that his grandmother is trying to sleep.  Despite being somewhat cacophonous, my husband and I are concert fans as it means the R.A. is engaged in an activity that is neither death defying nor involving permanent markers.  My mother is not a fan and therefore wrangled the SOI from the R.A. and deposited it into her bedroom.  A couple of days following this incredible act of defiance the R.A. paid a visit to his grandmother in her bedroom.  He was very sweet and affectionate.  After the R.A. left the room my mother discovered that he had swiped the SOI.  He is our own Mata Hari with freckles and outrageous cowlicks.


Another favorite concert spot is standing on top of our convection oven which is located on top of a table in our kitchen.  For these concerts the R.A. is a conductor using the SOI as a baton, directing an unseen orchestra who apparently are not very good, based on the amount of yelling he does during the program.

I Am Master of All I Survey (as Well as All That I Don't)
Apparently everything that the R.A. is currently interested in is located on high shelves or cabinets.  They are also things that my husband and I cannot fetch for the R.A. quickly enough as we are goofing off doing things like laundry or taking a shower.  Never one to let the grass grow under his feet (partially due to allergies), the R.A. then takes it upon himself to get what he wants.  Sometimes this involves complicated feats of engineering like dragging 24 packs of diet Coke across the room and using them to construct make shift ladders to scale the stove to reach the cabinets over the stove.  When a man needs Snoopy gummies he will apparently stop at nothing.  So much for putting snacks in hard to reach locations.

Give Me Liberty or Give Me Lollies
The freedom of vacation is transferring to the R.A.'s desire to be liberated from his clothing.  In addition to having to closely monitor him to keep him from climbing convection ovens or decorating the living room walls with crayon, we have discovered that any time the R.A. is left unattended he removes all of his clothing.  For some reason his preferred "undressing" room is the stairway that goes from the first to the second floor.  As a result, the R.A. has spent the later part of his vacation sporting backwards and footie-less footie pajamas.  (And rockin' the look as always.)  We are only dressing him in pants and a shirt if we are going out.  We still have two days left of vacation so that could change too.

We will have to see how our remaining days go.  I fully anticipate his Grand Finale will involve scaling the roof or hot wiring his father's car.  While dressed in backwards and footie-less footie pajamas, of course.




Sunday, November 25, 2012

Here We Go Again (Yet Again)

As those who regularly read this blog know, the R.A. has his share of quirks/obsessive compulsive tendencies - coloring every square inch of a sheet of paper (both sides), lining up Thomas trains, a preference for McDonald's french fries, his eating habits in general.  He also has other compulsions that tend to be cyclical, randomly appearing and disappearing - for example taking every puzzle piece out of its frame and lining the pieces up on the floor or arranging Dum Dum's in distinct patterns on the floor. He will engage in certain behaviors or activities for weeks or even months.  Then abruptly, with seemingly no (earth) reason, will stop an activity.  But then, just as mysteriously, months later the R.A. will take it up again.  My theory is that these activities have to do with planning the imminent invasion of earth.

Currently the R.A. is back to his puzzle piece obsession.  There are four wooden puzzles involved - a number puzzle, an alphabet puzzle, a teddy bear puzzle, and a train puzzle.  All the pieces from all of these particular puzzles are involved.  It's never some of the train and all of the ABC or just all the number puzzle.  It's all or nothing and it's never nothing.  A new twist is that the pieces of the number puzzle must be removed at the bottom of the stairs and only in that location.  If we try to grab him as trots by us with the puzzle he will nimbly dodge us while yowling in frustration - "Don't you get it?  I can only set this model up in that area or the experiment won't work! I can't set it up in the middle of the living room as that will incorrectly increase the number of variations.  Oh my Kitchen God, these earthlings are so stupid!  It's a wonder they haven't annihilated themselves in bizarre washing machine accidents."

Once the pieces are removed and arranged he never touches them again.  We must step around the pieces, over the pieces, and sometimes (and painfully) on the pieces.  The R.A. tiptoes or toe jumps gracefully between the pieces, occasionally pausing to finger flick and yowl at random pieces. Perhaps he is reading patterns or working on some sort of brilliant alien equations - "Okay, so if there are roughly 7,054,543,253 people occupying this Kitchen God forsaken planet, and if my calculations are correct, we will need 17.6 zfbiks to vaporize half of them.  Give or take half a pzv."

When we ascertain that enough time has passed that we may request the R.A. pick up the pieces without him unleashing too much viciousness, we tell him it's time to clean up and to really bring the point home, we start to sing the clean up song.  He shrieks in indignation (either at having to break down his work or at our singing or a combination of both), chins himself and then usually the offending parent and thus begins the deconstruction of his models.  Every endeavor with the R.A. must also involve his unique imprimatur and puzzle clean up is included.  The R.A. doesn't just pop the pieces back into their designated spots in their frames.  Each piece is picked up, placed in its spot and then, with his right index finger, the piece is rubbed three times.  He does this for each piece he touches.  The rubbing procedure ensures clean up time takes at least double the time so we have to make sure we have allotted enough time in our own schedules for the enterprise.  Remember - nothing is ever simple with this kid.  That's probably part of his overall plan.

Another bit of R.A. whimsy involves his clothes or rather lack of clothes.  Back when the R.A. was about two years old he started removing his clothes during nap time and during the night.  Upon entering his room we would discover the R.A. in his natural state.  Taking the idea of "Nature Boy" to the extreme he would also wee and/or poo all over his room and all items in it (bed and toys.)  The R.A.  would greet us one of two ways -  crowing happily and jumping up and down in delight (often in a puddle of his own waste) or standing tip toe on his window sill growling, "Tuck! Tuck!" meaning "Stuck! Stuck!"  Although the R.A. could very agilely pull himself up onto the sill he could not figure out how to get down and would thus strand himself on the sill.  When this occurred he never called out for help instead waiting until the grown up finally appeared and then, irritated, demanded that the stupid adult pull him down.  Luckily the R.A. only has two windows in his room and even more fortunately one faces our street and the other is directly over our neighbor's driveway and faces right into their dining room.  Yes, they did have many memorable Sunday dinners as they often reported to me.  

Many issues were created by this "au natural" quirk.  My husband and I were very worried about the R.A.'s penchant to hang out on window sills.  Although we were distressed by the idea of the R.A. falling out the window, having been well acquainted with the R.A. and his talent for naughty, we were more concerned about him climbing out the window and on to the roof.  Because let's face it, there was a better chance of a naked roof stroll than a fall.  After much thought and consulting experts (carpenters, the fire department, circus performers) we decided to Plexiglas over the windows and sills, thereby preventing the R.A. sill access.

We only Plexiglassed windows in the R.A.'s room figuring when he got stranded on sills in other rooms in the house there would be an adult immediately on the scene.  Theoretically the adult would be so attentive that the R.A. wouldn't even get a chance to climb up on the sill...  Okay, sometimes we aren't always and literally on top of the R.A.  Don't forget that he is crafty in a super villain sort of way.  Listen, don't judge us!  The dishwasher is not going to unload itself! Despite living with said super villain we still have a home to run.

Despite taking care of the sill situation we still had the problem of the R.A. using his room as his own personal chamber pot.  My husband and I briefly discussed duct taping the diaper onto the R.A. but were dissuaded by the fact that the R.A. has sensitive skin.  Coincidentally at about this time my husband caught a documentary on television about a family that had six children on the autism spectrum.  Some of these children also removed pajamas during the night.  Their clever parents devised an ingenious solution, even more ingenious as it didn't involve anything expensive or complicated.  They purchased one piece, zippered, footie pajamas and cut the feet off them.  The pajamas were put on the children backward so that the children couldn't reach the zippers and therefore could not undress.  Genius!  Why those people were not nominated for a Nobel prize in science I will never know.  

Why I bring the "au natural" idiosyncrasy up is that it has reared its ugly head or rather bottom again.  Yesterday morning my husband discovered the R.A. in his room in all his "glories" and with various "presents" left all over the room.  As the R.A. had not engaged in naked time for well over a year, we had forgotten about it.  He has worn "regular" two piece PJ's to bed loads of times and has been put into his room for naps in his clothes without any incidents.  But that's part of the R.A.'s M.O.  He always lulls us into a false sense of security and then BAM! He's all about keeping us in a constant state of "What the hell happened?"  Between lack of sleep and messing with our heads the R.A. always has the upper hand.  So we're pretty much always where he wants us:

Confused, exhausted, frazzled, and a little frightened.

Frankly, I'm ready for the vaporization.