So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Sunday, August 28, 2011

The Marx Brothers They Ain't

The other night my daughter, my mother, and I were sitting on the couch watching "America's Funniest Videos."  We were roaring with laughter.  Since I have the sense of humor of a 14 year old boy I howl whenever they show the "getting whacked in the Lord and Little Gents"* clips.  Fortunately AFV is heavily laden with them.

The R.A. was sitting in a chair across from us.  He would look at the TV, look at us, back to the TV, back to us and so on.  His expression read, "What?  I don't get it."  Finally the R.A. couldn't stand it any more.  He jumped off his chair, tugged on my arm and said, "Night, night" meaning he would rather go to bed than have to watch another minute of dogs riding sleds - yet more evidence that he's from another planet as everyone loves the dogs riding sleds shtick.

So what does the R.A. find amusing?  What tickles his funny bone?  He does have these hysterical laughing fits.  Typically these happen when nothing remotely funny has happened such as Fr. Mark updating the congregation on his father's surgery or while I'm taking an important phone call (that time he was laughing so hard he fell off the bed - thank God for his large and durable noggin).  What's probably happening during these laughing jags is he's on a call to the home planet and is regaling them with one of our dumb ass moves:

Oh, my Kitchen God!  It was hysterical!  That Mommy Lady was busy with that "Sister Person" but I was bored.  So I went to the fridge and pulled out a carton of cream. As I am allergic to dairy I tried to pour some into my mouth.  Unfortunately it primarily ended up on the floor.  It seemed a shame to waste it and it looked so inviting.  Of course I rolled in it and lapped it up from the floor.  That Mommy Lady came charging into the kitchen, screamed, and hauled me into the living room.  As she cleaned up the floor the dairy allergy kicked in and I started to wretch.  I had just situated myself on the couch and was about to vomit all over it when that Mommy Lady came tearing into the living room and dragged me off the couch.  A real shame because I know I could have covered it with boof.

Sometimes, just for the fun of it, I like to gag, make like I'm going to hurl. I do it out of the blue.  You should see how it freaks them out!  Sometimes I laugh so hard I could wet myself.  Heck, most of the time I do!  If there's one thing I've learned from my time here is that you have to make your own fun and preferably at their expense. 

While I don't know what he's laughing at I do know one thing - he's not laughing with us.  He's laughing at us.

*"Man Bits"

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