It's hard to believe but this is post # 50. It seems like only yesterday the R.A. had done something (yet again) completely foreign, totally flummoxing me and I thought, "I will share this with the world. It's not enough that close friends and family know how excruciatingly stupid I am." And so the Reluctant Astronaut's Mom's blog was born. What an auspicious moment for personkind! I also confess that I was getting really sick of those saccharine-y "My child has autism but is amazing and I wouldn't change it for the world because his autism has made me a better person and by the way I single-handedly care for him and I went back to school to become a BCBA* so I can continue his therapy at home after school hours and on weekends and I don't have any money challenges because of the autism and this blog is a testament not so much to my child's triumphs but to me crowing about my self sacrifice and how freaking fabulous I am" blogs. Blech! Those parents are really autism's most serious casualty.
Those parents. You know who those parents used to be? Picture it - 10th grade. Last period on a Friday afternoon in the beginning of June. One minute before the bell rings. Everyone but one kid is watching the painfully slow progression of the second hand on the classroom clock. Everyone, but that one kid, is holding their collective breaths and willing that second hand to go faster. Except for that one kid, whose hand has shot up into the air. It's flailing wildly and its owner declares, "But insert teacher's name here you forgot to give us our homework!" I was a complete dork in high school and even I wanted to beat up that kid. That kid grew up to be one of those obnoxiously over-achieving parents. They're bad enough when they're only parenting "neural-typical" kids. Add in a disability and those parents are brutal. I wanted to stuff their heads in toilets in high school and I still do.
Frankly, I can't believe I've stuck with the blog thing this long. That's a real miracle. I thought by now I surely would have surrendered to exhaustion or my terminal laziness and abandoned the whole thing. It's probably because I'm never allowed access to the TV so it's one of those "what the heck else am I gonna do?" thingos. I suppose I could do some cleaning in those down moments. insert loud guffaw here It's too bad for the world that for once I am following through on things.
You're welcome, world.
*To put it in technical terms - one of those autism-y specialist type persons
The earth-bound adventures of a reluctant alien astronaut and his not overly bright human caretakers.
So what is it like having a child with autism?
So, what is it like having a child with autism?
I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -
For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.
That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.
For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -
Cat
Has to everything his way
Reluctant Astronaut
Ditto
Cat
Don't touch me!
Reluctant Astronaut
Ditto
Cat
Doesn't speak human language
Reluctant Astronaut
Ditto
Cat
Doesn't wear clothes
Reluctant Astronaut
Ditto (Well, would if he had his way)
Of course I don't really believe my son to be a Reluctant Astronaut.
But sometimes it sure makes sense!
Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."
I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -
For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.
That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.
For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -
Cat
Has to everything his way
Reluctant Astronaut
Ditto
Cat
Don't touch me!
Reluctant Astronaut
Ditto
Cat
Doesn't speak human language
Reluctant Astronaut
Ditto
Cat
Doesn't wear clothes
Reluctant Astronaut
Ditto (Well, would if he had his way)
Of course I don't really believe my son to be a Reluctant Astronaut.
But sometimes it sure makes sense!
Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."
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