So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Friday, September 30, 2011

He (Toe) Walks in Beauty

Well, the R.A. finally got the big break in his modeling career that he'd been waiting for.  He's going to be the cover boy for his school's newest brochure.  Frankly, I don't know if the R.A. got the coveted cover because of his fresh faced looks or because it was the only shot the school had of a student that didn't look confused or p.o.'d.  My husband, on the other hand, was positively thrilled.  The other morning he said to me, "Do you think they will have the new brochures ready for Sunday's autism walk?"  Seeing as they only took the photo roughly about 12 minutes ago I told him I didn't think so.  Honestly, the man is beside himself with excitement.  What does he think - that there will be modeling scouts from New York and Paris casing the autism walk for the "Next Big Thing?" 

I was amazed that they were able to get a decent photo of the R.A.  Most photos we have of the R.A. look like something out of "Ghost Hunters" as he's usually portrayed as a blur.  The few still shots of him are not that flattering as he looks angry yet confused.  We have this one photo of the R.A. that we refer to as the "What the FU#*?!" picture as that is clearly what his expression is saying.

I will say, and I say this completely objectively, in person the R.A. is remarkably adorable.  Although darker like my side of the family, no one ever says he looks like me.  Oddly, many people say the R.A. looks like my brother.  I know, creepy weird, right? 

I confess this sort of disappoints me.  The R.A.'s sister looks very much like her father. She was his "mini me" piping hot straight from the womb.  My husband has been stopped by people he doesn't know who say, "You're KiKi's dad."  In my case, when I would take my blond haired, blue eyed infant daughter places, people would coo over how beautiful she was and inevitably turn to me and say, "And this is....?"  My mother used to say they probably thought I was the nanny from Ecuador.  When my mother and I would be out with the baby I told my mother people probably thought we were the housekeeper and the nanny taking out the boss' kid. 

One day I just snapped.  My daughter and I were at Friendly's and right on cue, after fawning over the baby the waitress asked "The Question."  I responded that I was indeed the baby's mother and that I had adopted her from Sweden as everybody knows all the best babies come from Scandinavia.  As far as what was hot in international adoptions, Scandinavian babies were the new Chinese babies.  Unfortunately my snarky sarcasm was lost on the waitress who listened attentively to me.  She probably went home and knowingly told her family, "China's out.  Sweden's in."

Once my daughter started talking and publicly referring to me as her mother, "The Question" stopped being asked.  People now just assume she's adopted.  I am sure by the time she's a tween she'll be telling people that anyway.

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