So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Monday, March 5, 2012

Where the #*&% Have You Been?

My most devoted fans have wondered where I've been.  I thank both of you for your interest.  I've just been living my usual jet-set/rock and roll lifestyle. Although you're probably going to read about it in next week's People magazine, I thought I'd share some of this past week's low-lights.  There's so so much I just don't know where to begin:
  • I celebrated a birthday.  In a fitting fashion, the auspicious occasion was heralded in with a shower of throw up.  At approximately 12:20 AM (EST) I was awakened in the wee hours of the day marking my birth by a screeching, retching, gagging, and vomit covered R.A.  He proceeded to make the event more memorable by his insistence of not only rubbing the vomit into his eyes but then becoming enraged that the act made his eyes hurt.  My husband claims that the R.A. was so excited by the prospect of my birthday that he made himself sick.  I disagree and instead believe something more sinister was at hand.  It's all part of the R.A.'s dastardly plot to take over the world.  The R.A. is consistently sick on any and all special occasions and holidays.  It's so bad that I'm more surprised when he isn't sick for a special event.  I think he does it as a means to break our spirit - remove the joy and the impending despair will do its worst.  The R.A. is a master of psychological warfare.  I'm at the point where I dread holidays.  Well played, R.A.!  A few more "strep throat" Christmases and I will off my own self with the nearest strand of Christmas lights.  On the plus side, this birthday finally superceded what had originally been the worst birthday - the year I set my own hair on fire blowing out the candles on my cake.
  • I got my licensed renewed.  The only thing that made the whole experience even more harrowing was that I had to go to the RMV on my birthday.  Normally I am big fan of any activity which requires that I sit and wait for long periods of time (without my children - engaging in such an activity with my children violates certain portions of the Geneva Convention).  It's a rare opportunity where all I can do is sit where nobody is snapping orders at me that require me to fulfill them immediately if not sooner.  Unfortunately the lady at the RMV did bark at me.  As I suffer from PTSD as a result of my life with the R.A. in which all he does is bark at me, I fell to pieces.  We were doing the vision portion of our little registry tete-a- tete and she kept roaring, "Read the third row!  The third row!"  So I kept reading the third row.  The more she barked, the more flustered I became.  I panicked that I wouldn't pass the vision test - and then how was I supposed to do the McD drive-thru for those demanded "fre fies" and "keh up?" I was terror-stricken.  My life passed before my eyes.  I feared I was going to faint from the strain.  Finally I took a deep breath, stepped away from the machine and squeaked, "Do you mean the third row down or the third row across?"  We literally had our "wires crossed" as she meant down and I thought she meant across (btw - isn't "across" a row and "down" a column?)  Once that was sorted out I did pass the eye test.  As a testament to the R.A.'s strict training my license photo came out quite nicely - there is no evidence of how traumatic the whole experience was.  My favorite part about the RMV adventure was that at the end I had to give them fifty dollars. At least at the conclusion of an R.A. episode I don't have to then pay him.  Yet.
  • I inadvertently became a contestant on "Man vs. Food Nation."  For this particular challenge, I had to see if I could shovel an entire sandwich into my mouth before the R.A. boofed all over the recliner, himself, and floor.  Boof won.  But it was a close match. I am not interested in a re-match.
As you can see, I've been going pretty much full out. You know it's been a long weekend when you're more exhausted on Sunday night than you were on Friday morning - and not for any merry reasons.  It's like my nana used to say, "It's a great life if you don't weaken."

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