So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Wednesday, June 1, 2011

Germ Warfare

The R.A. is sick pretty much all the time.  The breaks between his ailments are the only times he is well.  It's been this way pretty much since birth.  The first 9 months of his life the R.A. was sick because he was allergic to his formula and we've since discovered he's pretty much allergic to everything.  One of my friends remarked that the R.A.'s system is very sensitive to the earth's atmosphere.  I also think we have the only alien bent on world domination that has to carry an inhaler - it really ruins his street cred if a nebulizer is part of his arsenal of mass destruction.

Citizens of Earth (cough, cough)!  Today is your day of reckoning (wheeze, wheeze)!
You are now under my control (cough, wheeze, cough)!
Okay, seriously, is there a cat in here?  There must be a cat in here. (cough, cough)
Is that freshly mowed grass?  I can't do this under these conditions.  Can someone get me my inhaler? (puff, puff) I mean, honestly, do we have to invade a place with so much dander?  Surely there are other planets that are more hypoallergenic. (puff, puff). 
This is no way to run an invasion.
When epidemics strike our house it can pretty much be traced back to the R.A. or as we fondly refer to him, "Patient Zero."  The first signs of impending illness - the R.A. is extremely quiet and calm.  This sends a rush of panic over me because I know what's coming and it usually involves a trip to the Emergency Room.  During the various phases of whatever illness the R.A. is combating I spend most of my time yelling at my daughter to keep away from him as I try valiantly to control the spread of the epidemic.

Timing is everything when it comes to epidemics and the R.A. is fond of being sick on weekends, long weekends, vacations, birthdays, anniversaries, special occasions, and holidays.  I think it's all part of his plan to mess with us.  As last weekend was Memorial Day weekend the R.A. was, of course, sick.  As part of his plan of world domination he has used germ warfare to subdue us. My husband and I both have his cold. 
I'm also finding that as time goes on, the R.A. is coming up with new and more exotic conditions.  I'm sure at a future doctor visit we're going to be told he has ink disease which will be puzzling as that only affects kangaroos.  Not only will it cause us to wonder when the R.A. came in contact with a kangaroo but how someone who is "technically human" could come down with the condition.

Well, I'm going to see if I can bum the nebulizer off of Kangaroo Jack. (cough, cough, wheeze, wheeze)

No comments:

Post a Comment