So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Friday, June 3, 2011

No, we will not accept the charges

It's not unusual for the R.A. to engage in behaviors or activities for a time and then abruptly stop.  Or he may really like something, for example, a certain brand of gummies, and then all of a sudden not like them anymore.  Our favorite is the food fondness one as we are big fans of anything that the R.A. will ingest willingly.  But it's the food one that usually ends up biting us in the backside.  My husband, thrilled that the R.A. has added something to his diet, will rush out to his beloved B.J.'s and purchase two utility sized containers of whatever item it is.  It is typically within hours of that purchase that the R.A. will decide he no longer cares for that food.  Then we are left with vast quantities of it.  The worst time was when we got stuck with these vile allergy cookies.  So gross were those cookies that the rabid raccoons in our yard even refused to eat them.  I can't say I blame them.  It's bad enough to have food allergies but then to subject sufferers to those disgusting bits of yuck was a travesty.   There should be something in the Geneva Convention about those "cookies."

There are a lot of activities that the R.A. has engaged in and then stopped.  What's interesting about the activities and behaviors is that sometimes he will re-engage in them after a time.  (Sadly that never happens with food.  Since most of the "food" the R.A. likes is synthetically engineered it never goes bad so we could just hang on to it until he decides he likes it again.) 

For a time the R.A. was really into closets.  He would go into the closet and close the door.  Often the R.A. would just stand in there.  Sometimes we could hear him carrying on a one-sided conversation.  Other times he would try to lug in things that one would require when hanging out in a closet such as a large medicine ball.  An interesting closet that the R.A. would frequent was our bathroom closet.  This closet was a testament to the R.A.'s unusual taste and abilities as it has shelves meaning he would have to contort his body to fit in the closet while the door was closed.  This was his favorite closet as it came already stocked with interesting items such as full bottles of shampoo and toothpaste.  The R.A. especially liked it when his toothpaste was in there.  As the R.A. still hasn't mastered toothbrushing (the spit out part) he can't use fluoride toothpaste.  Therefore he uses toddler toothpaste, no fluoride and no spitting.  The R.A. is not a fan of toothbrushing but is a huge fan of his toothpaste.  One day we found him in our bathroom closet sucking back not one but two of his toddler toothpastes.  He was very cross when we made him come out of the closet and then infuriated when we wrestled the tubes out of his clenched fists.  I think what the R.A. was shouting translated into, "Hey!  I'm not done eating that! Get your own!"

He abruptly stopped his closet breaks and hasn't had one in months but this week the visits started back up again.  I found him in our bathroom closet.  The R.A. was having a spirited discussion with someone or something.  When I opened the bathroom closet door he became quite agitated and pulled it shut yelling, "No! No!" and then some other things that I didn't understand the actual words but if I could interpret tone meant, "Could I possibly get a moment to myself?  What is wrong with you?  Can't you see I'm busy?  I live my life with an audience.  Just once I'd like five minutes by myself.  That woman never leaves me alone.  What is her deal?"  Obediently I backed off.  (I knew where the toothpaste was kept and it was no longer in that closet and I was pretty sure we had nothing else "edible" in there or nothing that was supposed to be edible.)  The R.A. remained in the bathroom closet for quite some time and at times his long monologue became extremely loud.  I have since decided that the closets are actually some sort of intergalactic telephone booths. "Listen, that dog/alien nearly blew the entire mission.  You'd better accept the charges!"  Or maybe they are like those booths on the "Real World" where participants talk to the camera about their recent endeavors.  I bet that's it.  It would certainly explain why the R.A. gets so emotional in there.  "I distinctly conveyed to them that I do not like those new juice boxes.  But what do I find on my tray?  Those damn new juice boxes!  I have made faces when presented with those juice boxes.  I have grunted, groaned, and acted quite unpleasantly over those juice boxes.  Why, I have even shoved those damned juice boxes to the floor.  How much clearer could I be?  I'm telling you, it's like being held hostage by imbeciles dressed up as morons.  I don't know how much more of this I can take. Oh, there she is again.  I gotta go.  She's all excited because it's bath night.  That lady needs to get a life. Ciao."

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