So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Thursday, December 15, 2011

Anniversary Musings


178th Day of Skdlamvopekdmv a*m<>12pmaiod in the 3678th Year of Our Kitchen God

Annual Report to HQ

It has been 6 years since my assignment to this Kitchen God-forsaken planet.  I know my superiors hoped that in time I would adapt to Earth but honestly it is such a backward place that adaptation is impossible.  The only way I could do that is if I were to have a lobotomy - not that I am suggesting such a thing.  In that case I would still be several IQ points higher than my caregivers.

My superiors have requested that I review my accomplishments.  Unfortunately, as these Earthlings are such extremely lower life forms, getting anything done is a long, arduous and often thankless process, rarely yielding the desired results.  And they wonder at my frustrated bouts of self-hitting!  Some days my frustration is so pronounced I swear I'm going to implode.

After much thought here is what I have come up with:

  • Despite my Herculean efforts at curbing this lazy habit, my caregivers still indulge in sleep, although granted, my efforts have severely cut down the hours they spend lolling around in bed.  The Daddy-Guy is crying less when his sleep is interrupted.  Thankfully he is starting to "man up."
  • Mommy-Girl's greatest adversary is her stubbornness and insisting on access to electric lighting. I admit that since stepping up my training efforts the Mommy-Girl is slowly and painfully improving. Apparently she is also starting to "man up."  Her ability to dress in complete darkness is getting better and resulting in some very creative ensembles including mismatched footwear.  I have also made a point of never allowing her access to electric lights.  Now, even if she has a door closed (and locked) I will enter the room, shut off the lights, and then exit the room. I have learned that yowling in indignation prior to entering the room alerts her to my presence and she is then able to block the door with her body.  Now I move stealthily, like a jz%^vmm.*
  • I can vomit at will.
Grudgingly I am starting to learn Earth language.  Mostly it is due to the efforts of the officers at my new Institute of Earth Acculturation.  Initially, as they are all quite aesthetically pleasing, I thought they would coo over my chubby cheeks and freckles and we would spend our days coloring and eating gummies, much like my last Institute of Earth Acculturation.  Much to my horror I discovered this not to be the case.  They monitor me constantly, demanding I do things as they direct, presenting awful consequences if I do not, such as ignoring my outbursts, making me sit in the "Chair of Solitude," and denying me access to crayons and Thomas toys. Those ladies won't get off my back. What is up with that?  As you can see, when faced with such horrific consequences and in the name of self preservation, I am slowly starting to utilize the primitive Earth language.  One plus is that the "Clueless Wonders" (a.k.a. my caregivers), finally understand most of my demands.

As it is my Earth birthday, the Dimwitted Duo attempted to engage me in Earthling birthday customs.  One strange practice is lighting a cake on fire and presenting it to the birthday person.  At first I did not understand and thought they were going to torture me with it so I ran like hell.  Adding to the torment they then started singing.  When they finally realized that I was not going near the flaming cake, Mommy-Girl blew out the candle.  Then they repeatedly tried to get me to eat the cake.  Not only did they try but Nana-Lady and that Pi-Person did as well.  This went on for at least a half hour before they accepted that I would not eat their damn cake.  I did hear the Mommy-Girl tell them to stop because I would only throw it on the floor.  I admit I was somewhat impressed that she understood how the situation would play out.  Historically they are not so swift on the uptake.  Well, it's only taken 6 years.

So another year of my mission begins.  Kitchen God only knows what is in store.  I pray He gives me strength to endure.

*a very stealthy creature on the home planet.

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