So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Sunday, December 25, 2011

Happy Yowlidays

A Christmas morning quiz for you:

The R.A. woke up obscenely early this morning because:
A. He is excited about Christmas.
B. He knew we were up late last night and thought it would be fun to torment us.
C. He wanted to be ready for the invasion which is finally underway.

The correct answer is B although because it is not even 7 AM, the jury's still out on C.

Yes, the R.A. was ready and rearing to go quite early this morning.  We were woken to the gentle dulcet tones of his screechy caterwauling accompanied by the melodic kicking of his door.  It was as if he were announcing, "Awaken!  It is the birthday of Baby Jesus! (dammit!)"

My husband finally stumbled out of bed and released the R.A. from his room when it was apparent that the R.A. wasn't going to go back to sleep and we were afraid he was going to kick the door knob off his door.  The R.A. ran into our bedroom letting out a yowl that could awaken the dead, much as any cherubic Christmas herald would.

Usually when the R.A. is finally liberated from his room and treks to ours, I am out of bed.  This morning I was not and the R.A. found this novel.  He illustrated his interest by standing at the foot of the bed squeezing my feet and legs and occasionally chinning my feet.  My husband says most mornings the R.A. does that to him.  My husband has also theorized that the R.A. is looking for pressure points in an attempt to squeeze and paralyze the victim and/or elicit a death.  Thankfully the R.A. is not that knowledgeable regarding the human body and at this time is not capable of such a thing.

Next the R.A. spent time alternating between sitting on my legs and between my legs.  My husband and I tried to encourage him to lay down between us but to no avail.  When the R.A. did briefly have a lie down it was at the bottom of the bed, across my legs and with his head slightly hanging off the mattress.  Comfy - for him and me!

The R.A. did acquiesce for a short time and joined us at the top end of the bed.  He climbed between us and then proceeded to jump up and down while positioned between our heads.  It is surely a testament to how tired we are that we didn't stop him despite the obvious danger that he could misstep (or rather misjump) and land on one or both of our heads.  We were willing to risk it.

Fortunately the R.A. quickly tired of this.  Unfortunately he then bolted downstairs with his father in hot pursuit.  Further unfortunately the R.A. saw that the living room was full of wrapped gifts.  Between his recent birthday and a Christmas Eve party at his aunt's, the R.A. discovered the joys of unwrapping gifts.  He has found a real affinity for the activity.  On his birthday it was all about the fun of the act of unwrapping and not really noticing the actual gift.  On Christmas Eve it was like a bulb went off in his little alien brain - Wait a minute!  Sometimes after I rip the paper off it exposes something I am interested in!  This is fabulous!  More! More! I don't think I have received enough Thomas themed items!

So when the R.A. descended to the first floor and took in the gifts, my husband then had to convince him not to charge the packages (or his uncle who was sleeping on the couch, having migrated downstairs at the height of the R.A.'s one man early Christmas morning percussion extraveganza).  As you can imagine, this endeavor went extremely well and the R.A. was quite reasonable about it.  Not.

Yowling furiously, the R.A.returned to our room.  Now I must also mention that my husband and I have a temporary roommate - my daughter.  She has been relegated to a corner of our room while her uncle bunks in her bedroom until he heads out to this new job in California.  I am not digressing.  This is important to the story.  Back to the R.A. yowling in indignation - Yowl! Yowl! YOWL!  He then proceeds to run to his sister's bed and hoist himself up on to her frame at the foot of the bed on which he teeters precariously while flapping for Britain and caterwauling.  His sister pokes her head up from the covers and mumbles, "I can't sleep." and then tucks herself back in.  Clearly this is not her first rodeo with this sort of thing.

Tiring of this activity, the R.A. looks for something else to amuse himself.  He grabs the TV clicker and points it at my husband and me in the bed.  I don't think he's indicating he wants to watch TV but rather attempting to use the clicker to vaporize us.  Realizing it doesn't work that way he thrusts the clicker at my husband demanding "YOU!" meaning, "YOU turn on the TV as I want to watch it because you dopes are tedious."
Of course my husband lollygagged during this task and the R.A., deeply annoyed, rigorously barked at him, interspersing Yowlish with "Backyahdibans."

Once his dad finally got the TV situation under control, it was time to eat.  The R.A. demanded juice and Wheat Thins (the traditional Christmas breakfast.)  He munched contentedly while jumping up and down on his trampoline.  Occasionally the R.A. took a jumping break, moving his yoga ball on top of the trampoline, balancing himself on top of the ball while eating crackers while viewing the TV, a mere 3 inches from the screen.

Oddly enough, I could not get back to sleep so decided to tackle the blog, while still sitting in bed.  I have been diligently working, barely pausing when the R.A. has taken trampoline jumping breaks to jump up and down in the bed or when my daughter and I got into a rather heated discussion over her insistence on using my comb and brush to tame her dolls' hair tangles.

Currently my husband and the R.A. are involved in their own animated discussion.  The R.A. is hitting his father with the clicker and demanding, "Backyahdibans!" and my husband is responding (sounding more than a little desperate), "I told you, pirate Backyardigans is not available on DEMAND."

Ah, family togetherness.  Isn't that what the Yowlidays are all about?

Happy Yowlidays, Reluctant Astronaut!

P.S. When it finally was time to go downstairs to open the gifts, the R.A. did not want to go.  When we said it was time, he stood on his yoga ball and declared firmly, "No!"  Eventually we did get him sort of downstairs.  Initially he refused to come into the living room, choosing instead to dangle off the stair banister while yowling loudly.  I think the R.A. may have been engaging in some weird alien caroling.  At times he was so loud we couldn't hear each other talk.

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