So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Thursday, December 1, 2011

A Regular Blabber Mouth

In spite of not being much of a talker (well, at least not using a recognisable Earth dialect) the R.A. is very skilled at the art of communication.  My family is also becoming more fluent in "Yowlish:"

The R.A.: "Yowl! Yowl, Yowl, Yowl, Yowlllll!!!"
His Father: "I told you I can't put on the Backyardigans' pirate episode because 'On Demand' is not working and it doesn't matter how many times you whack me in the head with the clicker.  The thing isn't working."

The R.A. "Yowl! Yowl! Yowl! Yoweeeelllll!"
Me: "I know you don't want me to go near my closet but I can't go to work without my pants.  Again."

The R.A. does have some Earth language communication skills including a modest English vocabulary.  He just chooses not to use any of those skills voluntarily.  The R.A. uses English only when forced and then only done under extreme duress and with a dash of insolence and a smidge of resentment.  It's probably something along the lines of refusing to use the language of his lower life form and excruciatingly dimwitted captors.

When the R.A. does speak English, he is a "lazy talker."  The beginnings of his words and phrases come out clear and strong but by about half way through it peeters off.  For example, "Happy Thanksgiving" sounds like "Happy Gib....."  I think the R.A. has a very low regard for English (and Earth culture in general) and that by half way through whatever he's saying he's like, "Oh, hell.  Who cares? I don't.  Whatever."  It's as if he can't be bothered taking on such a Barbarian tongue.  The R.A. obviously feels it isn't worth the trouble to learn the language as once the invasion comes we will all be forced to speak Yowlish.  Thankfully my family already possesses a good fundamental understanding of Yowlish.  Unfortunately, although we comprehend it, we can't speak it.  I'm sure that will be o.k. as our new masters will no doubt attribute our inability to speak Yowlish to our inferior Earth intelligence.

There are actually many instances of children on the autism spectrum with extremely limited communication skills, even those who don't speak at all, to one day - BOOM! - speak in complete sentences.  It would not surprise me if one day the R.A. did this.  It also would not surprise me that he would be speaking in Maori  - just to be defiant.  It would be yet another way for him to torment us as it's not like we are in the epicenter of indiginous New Zealand culture.  He would also probably say things like "Epo e tiy tiy aye!"*  which would translate into, "Suck it, lower life forms!"

*Not actual Maori

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