So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Thursday, January 26, 2012

Thursday's Not Looking So Hot Either

I started my day with a whack to the eye.  On the one hand a tough way to start the day but on the other hand it gives me hope that it can only get better from there.

The R.A. decided to take a pass on sleep last night/this morning.  When my husband got home from work at about 2 AM, he heard the gentle crashings of Thomas trains and the R.A. emitting mellow yowls .  At that point the goings on were quiet enough that I slept through them and when I say "quiet" I mean on par with the Battle of Bunker Hill as opposed to storming the beaches of Normandy.  So "regular" people probably would not be able to sleep through it. My husband climbed into bed clinging to the delusion that the R.A. would go to sleep. It isn't faith or courage that causes one to hold on tightly to hope in the midst of impossible odds.  It's sleep deprivation which makes one somewhat nutty.  Isn't that the definition of insanity - doing the same thing over and over and expecting a different outcome?

I managed to slumber through until about 3:45 AM.  It was at that point that the shrieking started - now things sounded more like the opening scene from Saving Private Ryan.  My husband stumbled out of bed and brought the R.A. into our room.  As the R.A. ran into the bedroom, his dad told him to get into the bed.  The R.A. ran over to my side of the bed and promptly whacked me in the eye.  I think it was his way of saying, "Gee, Mommy-Lady, you're not supposed to be there.  That's my spot."  We hustled the R.A. into the bed. With the R.A. liberated and somewhat quiet, my husband went to use the bathroom facilities.  He was quickly joined by the R.A. who yowled and then, despite his father's protests,  turned off the bathroom light.  The R.A., with a sense of a job well done, climbed back into bed next to me.

Grunting, my husband returned to bed. By this point, after all the early early morning high-jinx, the R.A. had worked up an appetite.  He turned to his father and said, "Sowwy, Duddy"(translation: Sorry, Daddy.)  Then he said, "Eat chip."  We like to think it was the R.A.'s way of saying, "Sorry, old boy, to be a bother, but might I have some chips?"  His father tried to finagle some compassion out of the R.A. and bargain for some time, pleading exhaustion.  The R.A. wasn't having it and demanded, "Eat chip now!"  Again his dad stumbled out of bed.  While he was gone, the R.A. quasi-cuddled into me.  Next he spent time pinching my arm and tugging on my arm hair.  I don't know if the R.A. was torturing me or if he was taking some sort of measurments for my shackles for when the invasion comes.  Of course I let him go at it because at least he wasn't running around the room.  His father re-appeared with chips and juice and settled back into bed.  Unfortunately the R.A. was not pleased with the juice and placed the cup on top of his father's head saying, "Want juice.  Want juice now."  My husband didn't even bother arguing.  Knowing he was beaten, he meekly took the cup and without a sound went down to the kitchen. 

The R.A. took this time to stretch his legs and began jumping up and down on the bed.  I decided it would be more relaxing to do 5 miles on the elyptical at the gym so got out of bed and began readying myself.  After dressing I went into the bathroom to brush my teeth.  Almost immediately a tiny hand crept around the door frame toward the light switch.  I had already surrendered my nice cozy bed.  I would be dog goned if I would give up the light too.  "Oh, no you don't!" I bellowed, well hissed because I didn't want to wake up my daughter.  We wrangled and I manhandled him out of the bathroom, quickly closing the door.  He did not take kindly to this and hurled himself at the door, repeatedly.  Luckily I still have a few pounds on him and I was able to keep him out.  By the time I finished my morning "toilette" the R.A. was tucked back in the bed - on my side.  I swear he smirked at me.

After a "restful-by-comparision" visit to the gym, I schlepped softly up to my room.  There I discovered both of my boys were passed out in the bed, in almost identical sleep positions.  They looked very sweet and peaceful.  It took every ounce of self control not to get a running start and fling myself onto the bed.  You're welcome, boys.

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