Today the R.A. was up at 4 AM-ish and again waking up on the wrong side of his mound of pillows. He yowled loudly and angrily while raking Thomas trains across his hard wood floors. What a sweet cacophony! When the R.A. wakes at an un-Kitchen Godly hour we do not rush to pull him out of bed. We wait and see just how furious and loud he gets. Then we like to see if we can gauge it so that we pull him out before he gets so worked up that he boofs. It's sort of our version of chicken but far more devastating. We are not being mean it's just that as we say, "You pull him, you own him" meaning now you have to keep tabs on him and try and prevent him from climbing high shelving via a medicine ball balanced precariously on top of a trampoline (of course - how else would one reach the top shelf?) This morning I went to the gym as it was decidedly more fun doing 3.5 miles on the StairMaster than wrangling the R.A. out of precarious situations.
I don't know what transpired in my absence but I came home to find a bag of Munchos dumped at the bottom of the stairs heading up to the second floor. The house was in complete darkness but the R.A.'s soulful caterwaulings could be distinctly heard. As I surveyed the pile of Munchos I looked up and at the top of the stairs, bathed in an eery light stood the R.A., silently staring down at me. He stimmed madly at me and then trotted off. It was sort of creepy in a "Children of the Corn" kind of way and I briefly wondered if he had done something to the rest of the family other than tormenting them with an early morning concert of his "Top 10 Yowls." But then I looked at the clock and knew I had to get breakfasts prepared, lunch packed and other exciting tasks. I didn't see any trails of blood so decided all was fine.
By the time I headed back upstairs to get ready for work, the R.A. had shut himself back in his room. He did venture out briefly while I was in the bathroom brushing my teeth. We engaged in a quick tussle over the light switch but it was very half-hearted on his end, almost perfunctory. The R.A. didn't even yowl. After that he returned to his room where I heard a continuous "SNAP! SNAP! SNAP!" As I didn't hear any crying I didn't check on him. At least he was occupying himself and quiet. Frankly I was grateful for a second day of uninterrupted showering and being able to choose my clothes with the lights on. Day two of matching footwear! They don't know what to make of me at work because I'm arriving looking so well put together. I should have told them to take a picture as I know it won't last.
The earth-bound adventures of a reluctant alien astronaut and his not overly bright human caretakers.
So what is it like having a child with autism?
So, what is it like having a child with autism?
I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -
For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.
That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.
For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -
Cat
Has to everything his way
Reluctant Astronaut
Ditto
Cat
Don't touch me!
Reluctant Astronaut
Ditto
Cat
Doesn't speak human language
Reluctant Astronaut
Ditto
Cat
Doesn't wear clothes
Reluctant Astronaut
Ditto (Well, would if he had his way)
Of course I don't really believe my son to be a Reluctant Astronaut.
But sometimes it sure makes sense!
Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."
I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -
For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.
That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.
For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -
Cat
Has to everything his way
Reluctant Astronaut
Ditto
Cat
Don't touch me!
Reluctant Astronaut
Ditto
Cat
Doesn't speak human language
Reluctant Astronaut
Ditto
Cat
Doesn't wear clothes
Reluctant Astronaut
Ditto (Well, would if he had his way)
Of course I don't really believe my son to be a Reluctant Astronaut.
But sometimes it sure makes sense!
Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."
No comments:
Post a Comment