So what is it like having a child with autism?

So, what is it like having a child with autism?

I get this question a lot and actually like it when people ask. Unless a person has significant contact with someone on the spectrum he/she doesn't really understand what an autism driven world is about. Saying that, it isn't always easy to convey what having a child with autism is like. After much consideration, this is what I've come up with -

For me, having a child with autism is like living with an alien from another planet. I call him the "reluctant astronaut (R.A.)" because he really didn't want to come to earth, had absolutely no interest in this space mission. As a result, he didn't pay much attention at the briefings prior to the mission so doesn't know anything about Planet Earth - nothing about language, customs, or Earthling niceties in general. In fact, he is so disinterested in Earth that even though he was sent here, he has absolutely no desire to assimilate into Earth society. Meaning he still doesn't give a rat's ass about Earth mores.

That's also how I "explain" things he does that are pretty much unfathomable to me. For example - for a certain time period he liked to sit in the toilet. No, not on the toilet but in the toilet. I reasoned that on the home planet the toilet is a jacuzzi. Although eventually we managed to break him of this habit, the jacuzzi explanation popped again during potty training when the R.A. demonstrated not only an aversion to the toilet but would have all out nuttys when placed on one. He was probably thinking, "Poop in the jacuzzi? What is wrong with you people? Miscreants!" That's what he would say if he could speak English or any Earthing dialect.

For a time I was also convinced that not only was he a reluctant astronaut but was actually an alien cat that somehow ended up in a human body. It does make sense -

Cat

Has to everything his way

Reluctant Astronaut

Ditto

Cat

Don't touch me!

Reluctant Astronaut

Ditto

Cat

Doesn't speak human language

Reluctant Astronaut

Ditto

Cat

Doesn't wear clothes

Reluctant Astronaut

Ditto (Well, would if he had his way)

Of course I don't really believe my son to be a Reluctant Astronaut.

But sometimes it sure makes sense!

Disclaimer: Although I sometimes describe things about life with my R.A. in a humorous way, please understand that I am not laughing at him. He is my son and I love him very very much. I come from a family that had its share of challenges and I learned from a young age that laughter is powerful. A situation cannot completely hurt you if you are able to find humor and laugh at some parts of it. So that's what I do. And I don't use humor solely with the R.A. My daughter was born with a heart condition that required immediate surgery. (No, I don't make good babies. They come out broken.) She was whisked away by ambulance to the hospital in Boston. It was all unexpected and traumatic. A nice young intern came to speak with my husband and me and was re-assuring us that nothing we had done caused the baby's condition. The stress and sorrow were overwhelming. When the nice young intern concluded I turned to my husband and said, "See, I told you it wasn't from all that smack I did during my pregnancy." The intern froze and then let out this huge belly laugh. Was I appropriate? Probably not. But I had to do something to relieve the stress. Astronaut life is stressful so find the laughter where you can.
And as G.K. Chesterton said, "Humor can get through the keyhole when seriousness is still hammering at the door."

Monday, July 4, 2011

Eat, Papa, Eat!


Something quite interesting about the R.A. is that in many ways he is late to the party, meaning there will be activities that we have engaged in for years and one day he suddenly notices - "Hey, that is booma rooma interesting!  Is it something new?"  For example, recently the R.A. noticed that I put shoes on in the morning.  If he is in my bedroom while I am getting ready for work, he will cease what he is doing and watch, mesmerized as I put the shoes on.  And it's not like I even have totally cool shoes.

Tonight, like many nights, the R.A. was initially working through dinner (those Thomas trains and Thomas cards don't line themselves up on their own).  The rest of the family began eating their meals.  Surprisingly, the R.A. sat down next to my husband and watched intently while my husband ate his dinner.  The R.A.'s expression said, "What's this about? What are you doing?  What are those metal things that you are holding?  What's that stuff on the plate?  Is this something new for you?  How long have you been doing this?" My husband was thrilled because the R.A. was showing a keen interest in an Earth activity.  We do tend to encourage that sort of thing as typically  the R.A. is either dismissive or disdainful of any Earth endeavors.  My husband started to explain to the R.A. that this was his dinner and pointed out the food on the plate.  But then the R.A. started to become involved in the whole eating process.  The R.A.'s father offered him some food which the R.A. emphatically declined.  Instead the R.A. grabbed the fork and tried to direct it into my husband's mouth.  The R.A. then proceeded to direct his father's meal consumption.  The R.A. was not a fan of any of the vegetables or potatoes - the only thing the R.A. permitted his father to eat was the meat.  Then, what his father was eating wasn't the only important thing but how fast he was eating and according to the R.A. not nearly fast enough.  My husband barely got a piece of meat into his mouth when the R.A. was already focusing on spearing the next bit of meat.  It's like the R.A. was some sort of bizarre food drill Sergeant who clearly thought chewing was for pansies.  At one point the R.A. became most impatient with his father's lollygagging and clapped his hands at his father as if to say, "Pick up the pace, fella!"  Most incredible was that it was too fast even for my husband who pretty much inhales his food.  At one point my husband had a hard time catching his breath.

Then, just as quickly and surprisingly as it started, it stopped.  The R.A. hopped off the chair and went back to his Thomas work, demonstrating no interest in the rest of my husband's meal.  My husband was grateful to enjoy his indigestion in peace.  Tonight my husband's Facebook status is "Force Fed on the 4th of July."  None of his friends believe it.

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